Joe Mudukiza, 28, who was diagnosed with sickle cell disease at the age of two is contemplating medically assisted death. However, he has encountered resistance from those in his circle. Joe Mudukiza is a playwright and drama teacher from Lumakanda, Kakamega county.
Having lived with sickle cell illness for over twenty years, Joe has experienced ongoing suffering. Growing older has made the suffering even worse, to the point where he is considering ending his life. Since there are no legal options available in Kenya, Joe has asked the Association for the Right to Die with Dignity in Belgium for help in pursuing this option. Despite the challenges, he remains determined to find peace in the afterworld.
Joe's decision has encountered resistance from both his family and doctors, who are unwilling to endorse his choice. Specifically, Joe's mother expresses disappointment and insists on being part of his decision-making process. Additionally, his children, who view him as a source of strength, would also be significantly impacted by his choice.
Navigating life with sickle cell disease has been a intricate journey for Joe. Whether overcoming the hurdles of education or pursuing his passion for drama and teaching, he has confronted numerous challenges. Despite his advocacy for improved treatment options for sickle cell patients, Joe currently finds himself at a juncture where he perceives limited remaining options.
The agony of a sickle cell crisis is characterized as excruciating, rendering Joe unable to articulate or think clearly. While he turns to opioids for momentary relief, the continual battle with pain has significantly affected both his physical and mental well-being.
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From a legal standpoint, euthanasia is not acknowledged as an option in Kenya, compelling patients like Joe to explore death tourism in countries where it is permitted. Despite the uncertain future of euthanasia laws in Kenya, Joe remains resolute in his determination to pursue a peaceful end to his suffering.
Notwithstanding the challenges, there remains promise for the future in the form of better sickle cell disease treatment choices. New technologies like CRISPR-Cas9 gene editing provide possible remedies, but access to these therapies is still limited. While there is currently no permanent treatment, scientists are making great efforts to improve the quality of life for sickle cell sufferers.
